Showing posts with label Special Needs. Show all posts

Cecilia

Are you ready to meet a precious 1 year old baby girl who has Down syndrome!? We don't have good pictures, but I want to go ahead and introduce her anyway. She is soooooo sweet!



Cecilia has a $4,000 grant through Gladney. We are seeking an update and better photos for her and should get those soon. For now we know that she is 18 months old and she also has CHD (ASD).

She is a quiet, happy baby who only cries when she is hungry. She holds toys to play with them and babbles while she is playing.

We will post more about her as soon as we get updated information. Please contact us at superkids@gladney.org to learn more about adopting Cecilia!


Meet Our Children With Down Syndrome!

Look at these sweet babies! There are so many children with Down Syndrome in China and Taiwan who are waiting for families!

We are offering a $4,000 grant for any child with Down Syndrome adopted through Gladney! 






Please look at these cuties and ask yourself if you could open your heart and home to one of them. Also please share this video to raise awareness for these children. Let's work together to get these babies home!

Oh, and be sure to check out our Waiting Children With Down Syndrome page! There may be a fun little announcement hidden in there somewhere! Yes indeed, one of our kids has a family! Comment or like this post when you see which child has a family!

Everything's Coming Up...

Everything's coming up...

Rosie!!




It's Friday and I need you to see some videos. You need to see these. Just trust me on this.



Rosie is 4 years old and her special need is that her fontanelles closed prematurely and she had an abnormal brain scan. She has some developmental delays. Our pediatric physical therapist will be glad to speak with interested families about her.





Little miss cutie needs a family! Could she be your daughter? Please contact us at superkids@gladney.org for more information. 


Drew {Taiwan}

We bring to you today the adventurous, fun-loving boy, Drew! Our adventures included bubble blowing, measuring how tall he is, Lego building, handwriting, and even silliness with the electric tooth brush. He is a load of fun!



He is active and curious all while also being equally as caring. His relationship with his friends is so sweet to experience. As he worked on his Lego car he asked his friend to help. It was just so adorable to watch the two interact.



He also has the sweetest relationship with his case worker. It's precious to see the connection and trust they have built searching for his forever family.

Drew has the sweetest smile and the most fluffy eye lashes. His giggle is contagious.



Drew is in search of a family to call his own. A forever family. Could your life's adventure include Drew? We have so much to share, so ask away! For more information on Drew, please contact Mary Chapman at mary.chapman@gladney.org. 

Living With Hepatitis B

The following was written by a Gladney adoptive mom. Her insight is so valuable! Many kids with hepatitis B, including Dexter, are waiting for families! Would you be open to this special need?



I recently found out from Gladney that some potential adoptive parents are hesitant to pursue adopting children who have hepatitis B.  As someone who has chronic hepatitis B (HBV), I wanted to send a clear message to those parents: do not let the presence of hepatitis B, even chronic hepatitis B, prevent you from adopting an otherwise healthy, loving, and ready child.

Here’s my story.  For over 20 years, I never knew I carried the surface antigen for hepatitis B (HBsAg), nor that I had, and still have, chronic hepatitis B (HBV).  But to be honest, once I found out, not much changed in my life.  I continued to eat, sleep, drink, and exercise as I always did. Since I discovered my condition, I have rarely thought about it, and it has never affected my overall health. 

In my research on hepatitis B, I found that 1 in 12 Asian Americans is affected by hepatitis B. In China and Taiwan, it is an endemic problem with over one-third of the world's 240 million infected living in that region. And many that have it have no idea that they're infected, leading to the high mortality rates of those with hepatitis B.

But for those of us who are aware of our situation, and who get regular medical care, hepatitis B is a very manageable condition. I do, of course, monitor my health.  I have a hepatologist, whom I visit annually for an exam, ultrasound, and bloodwork. (When I reach 50 years old, I will have an ultrasound every 6 months.) So far, my virus load has been so low that there has been no impact to my liver. With consistent continuous monitoring, I will be able to detect any liver damage or disease early enough to successfully treat it.

And I'm careful about transmission to others. I cannot donate blood. I always practice safe sex. And my husband was vaccinated. When I had my daughter a few years ago, we made sure she was vaccinated shortly after birth so she wouldn't even have these concerns.

So I know that hepatitis B is very manageable.  Indeed, I’m not the only one in my family managing the condition. My sister is similarly affected. We believe the antigen was passed from our mother at birth.  She has had the same experience I have had.  

When I spoke with Gladney about a potential adoption and realized that hepatitis B was preventing some children from being adopted, I was truly shocked. Yes, there is a potential impact to the liver. However, with regular screening, that impact to the liver can be minimal and managed. In fact, the management of hepatitis B is probably less cumbersome than high blood pressure or diabetes, since there are no dietary concerns and daily monitoring is not necessary. 


So please, do not let the presence of hepatitis B, even chronic hepatitis B, prevent you from adopting an otherwise healthy, loving, and ready child.

A Night Among the Stars...

A night among the stars...



Our stars.



The hundreds of little reasons Superkids exists.



The reasons we fly to China and Taiwan. The many, precious little stars who steal our hearts, and inspire us, and keep us going when we are tired and over-busy.



Come spend an evening with us. Hear us talk about our Superkid stars. Meet some of our Superkids who are now home with their families. Both "Amanda" and "Goeff" (former advocacy names) will be there with their parents!



And it is all to support our continued work with and for these little stars! It's not too late to register, but the date is just around the corner and the seating is limited, so be sure to register soon!


FRIDAY, MARCH 4, 2016
 6:00 pm Cocktails
 
7:00 pm Dinner

Maloney & Porcelli
Skylight Room
37 East 50th Street, New York City



         REGISTER

                   Please click above to sign up as a sponsor or register for the event.


For more information, please contact Nonya Jordan 
at 817.922.6045 or nonya.jordan@gladney.org.

A Special Invitation!





A SPECIAL INVITATION

The Gladney Center for Adoption invites you and your friends to a special
 
 evening in New York City to benefit the Gladney Superkids Program. 
Join us for a memorable evening in support of our humanitarian efforts to find loving forever families for Chinese orphans with special needs.
 
FRIDAY, MARCH 4, 2016
 6:00 pm Cocktails
 
7:00 pm Dinner

Maloney & Porcelli
Skylight Room
37 East 50th Street, New York City




Please click above to sign up as a sponsor or register for the event.


For more information, please contact Nonya Jordan 
at 817.922.6045 or nonya.jordan@gladney.org.

Meet Nola!

Nola is a sweet 7 year old girl who likes to color. We met Nola in September. She has such a sweet smile!

She is a little shy, but she warmed up pretty quickly when we pulled out the crayons, coloring books, and stickers! She was careful in her coloring and loved using many bright colors on her pictures. She was so proud when we praised her for her good work!

Nola has hypothyroidism. It has been treated since she was a baby. Nola also shows some developmental delays.

She enjoyed stringing beads and could do a puzzle with verbal cues. She follows simple commands and answers simple questions. She speaks simple words in Mandarin clearly.

Nola is from our partnership orphanage that requests that we do not share photos publicly.  Please contact April Uduhiri at april.uduhiri@gladney.org for more information and to request to see photos.

We Have A Webinar Coming Up!

It is time for another webinar!

Superkids Spotlight: Congenital Heart Disease

Join Superkids Pediatric Physical Therapist Keely O'Dell for an informative series on common medical needs seen in children available for adoption. Our January webinar will focus on children with congenital heart disease. 

We will have a Q&A time at the end of the webinar to ask follow up questions from the presentation, or general questions about Gladney's China Waiting Child program. 

Join us on Thursday. January 21, at 1:00 PM EST. Register here!

Special Focus: Congenital Limb Difference

I am constantly amazed by the resilience and amazing resourcefulness of the children we have met in China with congenital limb difference.  These kids consistently find a way to get things done.  They have never experienced their body any differently, so they intuitively find ways to make it work—to make everything they want to happen, happen.

What is Congenital Limb Difference?

“Congenital “ means the child is born with the condition and “limb difference”, as you may have guessed, refers to any anomaly in the arms or legs. Their limbs are different. It could mean they are missing a bone in their leg, or even an entire hand. It refers to fingers that are fused and feet that are cleft.  It may be that a part of the limb or the whole limb is unusually large, or unusually small.   

What might treatment look like?


Treatments for congenital limb difference varies, depending on the cause and severity of the condition. The goal of treatment is to maximize function, to help them do everything they want to do.  Some children will not need any formal treatment. Some kids might use a prosthetic limb.  For others treatment may include surgeries or therapies.  Other children, especially those with upper limb differences, might benefit from adaptive equipment.

Who should we get involved?


Ideally children with congenital limb differences should be followed by a multidisciplinary clinic including an orthopedic surgeon, physical or occupational therapist and an orthotist/prosthetist.  This team can help your family determine the best plan for your child at every age.

Here are some amazing kids we have met with Congenital Limb Difference:


Jude



Lucas


Gordon


Pearl



Gia


- Keely O'Dell

Resources and Support